EXCELC - Exploring Comparative Effectiveness and Efficiency in Long-term Care
Type Research Project
Funding Bodies
- NORFACE (New Opportunities for Research Funding Agency Cooperation in Europe): Welfare State Futures
Duration April 1, 2015 - March 31, 2018
https://www.wu.ac.at/altersoekonomie/projekte/oekonomische-analyse-der-lanzeitpflege-und-betreuung/norface
- Research Institute for Economics of Aging FI (Details)
Tags
Press 'enter' for creating the tagAbstract (German)
EXCELC - Lebensqualität durch Betreuung und Pflege: ein Vergleich dreier Länder
Um Versorgungs- und Unterstützungssysteme für pflegebedürftige Menschen effektiv und effizient zu gestalten, ist es erforderlich die Wirkungen bzw. Ergebnisse der Langzeitpflege und -betreuung zu erfassen. Anspruch des Projektes EXCELC ist es daher, erstmals länderübergreifend zu ermitteln, wie Pflege- und Betreuungsarrangements die Lebensqualität pflegebedürftiger Menschen und ihrer betreuenden Angehörigen beeinflussen und welche Rolle professionelle Betreuungs- und Pflegedienstleistungen dabei spielen.
Wir wenden dazu ASCOT (Adult Social Care Outcomes Toolkit) an, ein Instrument zur Erfassung pflegebezogener Lebensqualität, um Effektivität und die Effizienz häuslicher Pflege und Betreuung im Vergleich dreier Länder, England, Finnland und Österreich, abzubilden.
Das Projekt EXCELC hat vier analytische Arbeitspakete (AP):
AP1: Erstellung valider Grundlagen für den internationalen Vergleich von lebensqualitätsbezogenen Effekten der häuslichen Pflege.
AP2: Erhebung länderspezifischer Präferenzen für Versorgungsergebnisse und Untersuchung der Unterschiede in den Präferenzen.
AP3: Analyse der Effektivität von Langzeitpflege im häuslichen Bereich national und im Ländervergleich.
AP4: Untersuchung der Kosten von Langzeitpflegearrangements in Verbindung mit den erzielten Ergebnissen im häuslichen Setting.
http://www.excelc.eu/de/
Abstract (English)
EXCELC - Exploring Comparative Effectiveness and Efficiency in Long-term Care
To meet societal and economic challenges, health and care welfare regimes will need to become much more focused on the outcomes that matter to people and deliver these programmes effectively and efficiently. Central to this goal is the need to accurately measure outcomes and reflect the value of those outcomes. We propose a cross-country study to measure outcomes in the field of long-term care (LTC). We will use a care-related outcome tool, ASCOT, to assess the comparative effectiveness and efficiency of non-institutional LTC (e.g. home care) for older adults and their informal carers in Austria, England and Finland.
The study has four analytical workpackages with these goals:
WP1: Establish a valid basis for international comparisons of LTC-outcomes in non-institutional settings, by developing rigorously translated and tested versions of ASCOT.
WP2: Generate country-specific ASCOT utility weights and explore variations in preferences for ASCOT quality of life domains across countries.
WP3: Explore variations in ASCOT-quality of life (QoL) within and between countries, providing evidence on QoL for service users, carers and the relationship between them, as well as QoL inequalities.
WP4: Explore and compare the relative costs, efficiency and cost-effectiveness of specific LTC services. We will use econometric methods, combining estimates of the effect of services on QoL and service cost.
http://www.excelc.eu/
Partners
- Center for Health and Social Economics, National Institute for Health and Welfare, Helsinki - Austria
Publications
Journal article
| 2021 |
Nguyen, Lien, Jokimäki, Hanna, Linnosmaa, Ismo, Saloniki, Eirini-Christina, Batchelder, Laurie, Malley, Juliette, Lu, Hui, Burge, Peter, Trukeschitz, Birgit, Forder, Julien. 2021. Do You Prefer Safety to Social Participation? Finnish Population-Based Preference Weights for the Adult Social Care Outcomes Toolkit (ASCOT) for Service Users. MDM Policy & Practice. 1-16.
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Trukeschitz, Birgit, Hajji, Assma, Kieninger, Judith, Malley, Juliette, Linnosmaa, Ismo, Forder, Julien. 2021. Investigating factors influencing quality-of-life effects of home care services in Austria, England and Finland: A comparative analysis. Journal of European Social Policy. 31 (2), 192-208.
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Nguyen, Lien, Linnosmaa, Ismo, Rand, Stacey, Malley, Juliette, Razik, Kamilla, Trukeschitz, Birgit, Forder, Julien. 2021. Social care‐related outcomes in Finland. Construct validity and structural characteristics of the Finnish ASCOT measure with older home care users. Health and Social Care in the Community. 29 712-728.
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Trukeschitz, Birgit, Hajji, Assma, Litschauer, Judith, Malley, Juliette, Schoch, Adiam, Rand, Stacey, Linnosmaa, Ismo, Forder, Julien. 2021. Translation, cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for informal Carers (German ASCOT-Carer). Quality of Life Research. 30 905-920.
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Nguyen, Lien, Jokimäki, Hanna, Linnosmaa, Ismo, Saloniki, Eirini-Christina, Batchelder, Laurie, Malley, Juliette, Lu, Hui, Burge, Peter, Trukeschitz, Birgit, Forder, Julien. 2021. Valuing informal carers’ quality of life using best–worst scaling: Finnish preference weights for the Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer). European Journal of Health Economics.
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Trukeschitz, Birgit, Hajji, Assma, Batchelder, Laurie, Saloniki, Eirini, Linnosmaa, Ismo, Malley, Juliette. 2021. What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria. Quality of Life Research. 30 (7), 1975-1984.
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| 2020 |
Trukeschitz, Birgit, Litschauer, Judith, Hajji, Assma, Kieninger, Judith, Schoch, Adiam, Malley, Juliette, Rand, Stacey, Linnosmaa, Ismo, Forder, Julien. 2020. Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (German ASCOT). Health and Quality of Life Outcomes. 18 (326), 1-19.
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Hajji, Assma, Trukeschitz, Birgit, Malley, Juliette, Batchelder, Laurie, Saloniki, Eirini, Linnosmaa, Ismo, Lu, Hui. 2020. Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment. Social Science and Medicine. 250 (11279), 1-10.
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| 2019 |
Batchelder, Laurie, Malley, Juliette, Burge, Peter, Lu, Hui, Saloniki, Eirini-Christina, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien. 2019. Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers. Value in Health. 22 (12), 1427-1440.
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Saloniki, Eirini-Christina, Malley, Juliette, Burge, Peter, Lu, Hui, Batchelder, Laurie, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien. 2019. Comparing internet and face-to-face surveys as methods for eliciting preferences for social care-related quality of life: evidence from England using the ASCOT service user measure. Quality of Life Research. 28 2207-2220.
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Chapter in edited volume
| 2019 | Trukeschitz, Birgit, Riedler, Elisabeth. 2019. Federalism Shaping Social Policy in Austria. In: Federalism and Social Policy - Patterns of Redistribution in 11 Democracies, Hrsg. Scott L. Greer, Heather Elliott, 165-192. Ann Arbor: University of Michigan Press. | (Details) |
Paper presented at an academic conference or symposium
| 2021 | Trukeschitz, Birgit, Hajji, Assma, Malley, Juliette, Linnosmaa, Ismo, Forder, Julien, Schneider, Ulrike. 2021. Quality of life of informal carers of home care service users: threats and beneficial factors. 25th Nordic Gerontology Congress, online conference, Island, 02.06-04.06. | (Details) | |
| Trukeschitz, Birgit, Hajji, Assma, Kieninger, Judith, Malley, Juliette, Linnosmaa, Ismo, Forder, Julien. 2021. Wie wirken sich Pflegedienstleistungen auf die Lebensqualität von älteren Personen aus? Eine vergleichende Analyse für Österreich, England und Finnland. ESPAnet Austria - ESPAnet Austria 4. Forschungskonferenz Sozialpolitik (Version 4.2), Universität Graz, Österreich, 27.09.-28.09. | (Details) | ||
| 2020 | Hajji, Assma, Trukeschitz, Birgit. 2020. Comparing the effectiveness of home care services in Austria, England and Finland. ATHEA Conference 2020, Wien, Österreich, 28.02.2020. | (Details) | |
| 2019 | Hajji, Assma, Trukeschitz, Birgit, Forder, Julien, Malley, Juliette, Linnosmaa, Ismo. 2019. The effects of home care services on quality of life outcomes in Austria, England and Finland. Transforming Care Conference, Kopenhagen, Dänemark, 24.06.-26.06. | (Details) | |
| 2018 | Linnosmaa, Ismo, Saloniki, Eirini, Nguyen, Lien, Jokimäki, Hanna, Malley, Juliette, Trukeschitz, Birgit, Hajji, Assma, Litschauer, Judith, Kieninger, Judith, Forder, Julien. 2018. A comparison of quality of life outcomes for carers of long-term care service users in Austria, England and Finland. NORFACE Future Welfare States Final Conference, Florenz, Italien, 24.05.-25.05. | (Details) | |
| Trukeschitz, Birgit, Hajji, Assma, Saloniki, Eirini , Linnosmaa, Ismo, Litschauer, Judith, Kieninger, Judith, Jokimäki, Hanna, Nguyen, Lien, Schoch, Adiam, Malley, Juliette, Forder, Julien. 2018. A comparison of quality of life outcomes for long-term care service users in Austria, England and Finland. NORFACE Welfare State Futures Programme Final Conference, Florenz, Italien, 24.05.-25.05. | (Details) | ||
| Hajji, Assma, Trukeschitz, Birgit, Kieninger, Judith, Malley, Juliette, Batchelder, Laurie, Saloniki, Eirini, Burge, Peter, Lu, Hui, Linnosmaa, Ismo, Forder, Julien. 2018. Applying Best-Worst Scaling to Elicit Social Care Related Quality of Life Preferences: The Method and Implications of Taste and Scale Heterogeneity. ILPN 2018, Wien, Österreich, 10.09.-12.09. | (Details) | ||
| Litschauer, Judith, Trukeschitz, Birgit, Hajji, Assma, Kieninger, Judith, Schoch, Adiam, Linnosmaa, Ismo, Malley, Juliette, Forder, Julien. 2018. Developing ASCOT for Austria – Translation and Validation. ILPN 2018, Wien, Österreich, 10.09-12.09. | (Details) | ||
| Trukeschitz, Birgit, Hajji, Assma, Saloniki, Eirini-Christina, Litschauer, Judith, Jokimäki, Hanna, Kieninger, Judith, Nguyen, Lien, Schoch, Adiam, Linnosmaa, Ismo, Malley, Juliette, Forder, Julien. 2018. Quality of Life of Long-term Care Service Users Living at Home. Evidence from Austria, England, and Finland. ILPN2018 - 5th International Conference on Evidence-based Policy in Long-term Care, Vienna, Österreich, 10.09.-12.09. | (Details) | ||
| Trukeschitz, Birgit, Hajji, Assma, Saloniki, Eirini-Christina, Litschauer, Judith, Kieninger, Judith, Linnosmaa, Ismo, Jokimäki, Hanna, Nguyen, Lien, Schoch, Adiam, Malley, Juliette, Forder, Julien. 2018. The impact of home care services on the quality of life of service users. First findings from Austria, England and Finland. EUHEA 2018 - 12th European Conference on Health Economics, Maastricht, Niederlande, 11.07.-14.07. | (Details) | ||
| Malley, Juliette, Hajji, Assma, Jokimäki, Hanna, Nguyen, Lien, Saloniki, Eirini, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien. 2018. The Relationship Between Outcomes For Long-term Care Service Users And Their Carers In England. NORFACE Welfare State Futures Programme Final Conference, Florenz, Italien, 24.05.-25.05. | (Details) | ||
| Hajji, Assma, Trukeschitz, Birgit, Kieninger, Judith, Malley, Juliette, Batchelder, Laurie, Saloniki, Eirini-Christina, Burge, Peter, Linnosmaa, Ismo, Forder, Julien. 2018. Using best-worst experiments to elicit preferences for long-term care related quality of life states: a closer look at sub-group differences and design effects . EUHEA 2018 - 12th European Conference on Health Economics, Maastricht, Niederlande, 11.07.-14.07. | (Details) | ||
| 2017 | Batchelder, Laurie, Saloniki, Eirini-Christina, Malley, Juliette, Burge, Peter, Lu, Hui, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien. 2017. Carer social care-related quality of life outcomes: Establishing preference weights for the Adult Social Care Outcomes Toolkit for carers. ISPOR - International Society for Pharmacoeconomics and outcomes research, ISPOR 22nd Annual International Meeting: "Evidence and Value in a time of Social and Policy Change" Boston, Vereinigte Staaten/USA, 20.05.-24.05. | (Details) | |
| Saloniki, Eirini, Batchelder, Laurie, Malley, Juliette, Burge, Peter, Lu, Hui, Linnosmaa, Ismo, Trukeschitz, Birgit, Forder, Julien. 2017. Comparing internet and face-to-face surveys as methods for eliciting preferences for care-related quality of life: Evidence from England using the ASCOT service user measure. iHEA - International Health Economics Association, Boston 2017 Congress, Boston, Vereinigte Staaten/USA, 07.07.-11.07. | (Details) | ||
| Trukeschitz, Birgit. 2017. Der Einfluss professioneller Pflege und Betreuung auf die Lebensqualität: Herausforderungen und Lösungswege für die Instrumententwicklung [The Influence of Professional Care and Assistance on Quality of Life: Challenges and Approaches for Development of Instruments]. 12. Gemeinsamer Österreichisch-Deutscher Geriatriekongress, 57. Kongress der Österreichischen Gesellschaft für Geriatrie und Gerontologie, Wien, Universität Wien, Österreich, 20.04.-22.04. | (Details) | ||
| Nguyen, Lien, Jokimäki, Hanna, Saloniki, Eirini-Christina, Batchelder, Laurie, Burge, Peter, Lu, Hui, Trukeschitz, Birgit, Malley, Juliette, Forder, Julien, Linnosmaa, Ismo. 2017. Eliciting preferences for social care related outcomes in Finland using the best-worst scaling approach. 38th Nordic Health Economists' Study Group meeting (NHESG 2017), Helsinki, Finnland, 23.08.-25.08. | (Details) | ||
| Linnosmaa, Ismo, Nguyen, Lien, Jokimäki, Hanna, Malley, Juliette, Trukeschitz, Birgit, Saloniki, Eirini, Batchelder, Laurie, Forder, Julien. 2017. Good health, better social care related quality of life? 38th Nordic Health Economists' Study Group meeting (NHESG 2017), Helsinki, Finnland, 23.08-25.08. | (Details) | ||
| Linnosmaa, Ismo, Nguyen, Lien, Jokimäki, Hanna, Malley, Juliette, Trukeschitz, Birgit, Batchelder, Laurie, Forder, Julien. 2017. Good health, better social-care related quality of life? iHEA - International Health Economics Association: Boston 2017 Congress: "Revolutions in the Economics of Health Systems" Boston, Vereinigte Staaten/USA, 07.07-08.07. | (Details) | ||
| Trukeschitz, Birgit, Hajji, Assma, Batchelder, Laurie, Saloniki, Eirini, Burge, Peter, Lu, Hui, Malley, Juliette, Forder, Julien. 2017. Gutes Essen oder nette Gesellschaft oder..? - Eine Best-Worst-Analyse zu den erwarteten Präferenzen bei Pflegebedürftigkeit in Österreich [Good Food or Nice Company or...? A Best-Worst Analysis on the Expected Preferences in Care Dependancy in Austria]. ATHEA - Austrian Health Economics Association, Wien, Österreich, 24.11. | (Details) | ||
| Hajji, Assma, Trukeschitz, Birgit, Kieninger, Judith, Batchelder, Laurie, Saloniki, Eirini, Burge, Peter, Lu, Hui, Linosmaa, Ismo, Malley, Juliette, Forder, Julien. 2017. Hinter den Kulissen - Wie funktionieren Best-Worst Experimente für die Berechnung von erwarteten Präferenzen bei Pflegebedürftigkeit und welche Faktoren beeinflussen die Ergebnisse? [Behind the Scenes - How Do the Best-Worst Experiments for the Calculation of Expected Preferences in Case of Care Dependency and Which Factors Influence the Results?]. ATHEA - Austrian Health Economics Association, Wien, Österreich, 24.11.2017. | (Details) | ||
| 2016 | Trukeschitz, Birgit, Schneider, Ulrike. 2016. Der Einfluss von Betreuungs- und Pflegeleistungen auf die Lebensqualität pflegebedürftiger Menschen [The Influence of Long-Term Care on the Quality of Life of Care-Dependant People]. Well-being Forschung in Österreich, Wien, Österreich, 15.02.-16.02. | (Details) | |
| Linosmaa, Ismo and Trukeschitz, Birgit and Krüse, Tobias and Hajji, Assma and Haula, Taru and Nguyen, Lien and Malley, Juliette and Razik, Kamilla and Forder, Julien. 2016. Translation and cross-cultural validation of ASCOT instruments into German and Finnish . ILPN (International Long-term care Policy Network) Conference, London, LSE, Großbritannien, 04.09.-07.09. | (Details) |
Working/discussion paper, preprint
| 2017 | Linnosmaa, Ismo, Nguyen, Lien, Jokimäki, Hanna, Saloniki, Eirini-Christina, Batchelder, Laurie, Trukeschitz, Birgit, Malley, Juliette, Forder, Julien. 2017. Comparative quality of life among Austrians, English and Finnish People. THL discussion paper 1/2017, Juvenes Print, Tampere. | (Details) |
Research report, expert opinion
| 2018 | Trukeschitz, Birgit, Litschauer, Judith, Kieninger, Judith, Schoch, Adiam, Hajji, Assma. 2018. EXCELC - Exploring Comparative Effectiveness and Efficiency in Long-term Care: Study Design and Descriptive Statistics for the Austrian Sample of Informal Cares. Vienna:Discussion Paper 5/2018 of the Research Institute for Economics of Aging, WU Vienna. | (Details) | |
| Trukeschitz, Birgit, Litschauer, Judith, Kieninger, Judith, Hajji, Assma, Schoch, Adiam. 2018. EXCELC-Exploring Comparative Effectiveness and Efficiency in Long-term Care: Study Design and Descriptive Statistics for the Austrian Sample of Adult Users of Home Care Services. Vienna:Discussion Paper 4/2018 of the Research Institute for Economics of Aging, WU Vienna. | (Details) |
Practice handbook, manual
| 2017 | Trukeschitz, Birgit, Pfabigan, Doris. 2017. Lebensqualitäts-Audit "Pflege Zuhause". Handbuch zum Erhebungsinstrument v1.0. | (Details) |
Media report
| 2018 | Trukeschitz, Birgit. 2018. ASCOT for Service Users and Carers - Experiences from Austria, in: ASCOT International Webinar 2018. | (Details) |
Magazine/newspaper article
| 2018 | Trukeschitz, Birgit. 2018. Mobile Dienste: Beitrag zu mehr Lebensqualität. Hand in Hand, 4/2018, 31.12.18 | (Details) | |
| Trukeschitz, Birgit, Hajji, Assma, Litschauer, Judith, Kieninger, Judith, Linnosmaa, Ismo. 2018. Wie wirken sich Pflegedienste auf die Lebensqualität aus? Trendreport 1/2018, 20.06.18 | (Details) |
Unpublished lecture
| 2021 | Trukeschitz, Birgit, Hajji, Assma. 2021. Quality of life of home care service users in Austria, England and Finland. ”Kotihoidon asiakkaiden elämänlaatu ja palvelujen vaikuttavuus –seminaari” [Quality of life home care users and effectiveness of their service use: Results from Austria, England and Finland], online seminar, Finnish Institute for Health and Welfare (THL), 08.04.21 | (Details) | |
| 2018 | Trukeschitz, Birgit. 2018. Wie wirken sich Pflegedienste auf die Lebensqualität aus? Ergebnisse einer aktuellen wissenschaftlichen Studie aus Österreich. Herbsttagung der ARGE PflegedirektorInnen im ÖGKV- Steiermark, Graz, 22.11.18 | (Details) | |
| Hajji, Assma, Trukeschitz, Birgit. 2018. ASCOT - Outcome-Messung in der Langzeitpflege: Tools und Einsatzmöglichkeiten. Workshop: Outcomemessung in der Langzeitpflege und -betreuung, Wien, 22.10.18 | (Details) | ||
| Hajji, Assma, Trukeschitz, Birgit. 2018. ASCOT - Outcome-Messung in der Langzeitpflege: Tools und Einsatzmöglichkeiten. Workshop: Outcomemessung in der Langzeitpflege- und Betreuung (Gesundheit Österreich GmbH), Wien, 22.10.18 | (Details) | ||
| Schneider, Ulrike, Trukeschitz, Birgit. 2018. Häusliche Betreuung und Pflege zwischen Wunsch und Wirklichkeit - 2.0. 10. Fachtagung "Ich bleib daheim" - ...ein Blick zurück und in die Zukunft..., Dachverband Wiener Sozialeinrichtungen und Fonds Soziales Wien, Wien, 27.09.18 | (Details) | ||
| Trukeschitz, Birgit. 2018. Lebensqualität durch Betreuung und Pflege - Erste Erkenntnisse aus dem EXCELC-Projekt für Österreich. Hilfswerk Österreich, AG Pflege und Altenbetreuung, Hilfswerk Oberösterreich, Linz, 20.06.18 | (Details) | ||
| 2017 | Trukeschitz, Birgit. 2017. EXCELC "Lebensqualität durch Betreuung und Pflege": Überblick über das Forschungsprojekt, Sampling-Prozess für Österreich. Hilfswerk Österreich: Arbeitsgemeinschaft Pflege & Altenbetreuung , Wien, 22.02. | (Details) | |
| 2016 | Trukeschitz, Birgit. 2016. Effekte von Pflege- und Betreuungsdienstleistungen auf die Lebensqualität: Herausforderungen und Lösungsansätze. 11. FSW-ExpertInnen-Forum: Die Zukunft der Geriatrie: Sackgasse oder Chance, Wien, Rathaus, 27.10. | (Details) | |
| Trukeschitz, Birgit. 2016. „Lebensqualität durch Betreuung und Pflege“ - Überblick über das Forschungsprojekt und Sampling-Prozess für Wien. Jour Fixe der GeschäftsführerInnen Mobiler Dienste, Dachverband der Wiener Sozialeinrichtungen, 20.09. | (Details) | ||
| Trukeschitz, Birgit. 2016. EXCELC „Lebensqualität durch Betreuung und Pflege“ - Überblick über das Forschungsprojekt und Sampling-Prozess für Niederösterreich. ARGE der Pflegedienstleitungen Niederösterreich, Hilfswerk Niederösterreich, St. Pölten, 30.06. | (Details) |
Classification
- 5421 Aging research (Details)